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Stichting Duchenne Data Foundation (DDF) - Brain Involvement in  Dystrophinopathies (BIND)
Stichting Duchenne Data Foundation (DDF) - Brain Involvement in Dystrophinopathies (BIND)

Large international project to study dystrophin in the brain in Duchenne  and Becker muscular dystrophy launched - Brain Involvement in  Dystrophinopathies (BIND)
Large international project to study dystrophin in the brain in Duchenne and Becker muscular dystrophy launched - Brain Involvement in Dystrophinopathies (BIND)

Home - Duchenne Data Foundation
Home - Duchenne Data Foundation

C-Path's Duchenne Regulatory Science Consortium and Duchenne Data Foundation  Announce Collaboration to Advance Solutions for Duchenne Muscular Dystrophy  | Critical Path Institute
C-Path's Duchenne Regulatory Science Consortium and Duchenne Data Foundation Announce Collaboration to Advance Solutions for Duchenne Muscular Dystrophy | Critical Path Institute

Large international project to study dystrophin in the brain in Duchenne  and Becker muscular dystrophy launched - Brain Involvement in  Dystrophinopathies (BIND)
Large international project to study dystrophin in the brain in Duchenne and Becker muscular dystrophy launched - Brain Involvement in Dystrophinopathies (BIND)

Duchenne Data Foundation (@DuchenneDF) / X
Duchenne Data Foundation (@DuchenneDF) / X

Duchenne Data Platform, the first patient-led registry to achieve a FAIR  status - Duchenne Data Foundation
Duchenne Data Platform, the first patient-led registry to achieve a FAIR status - Duchenne Data Foundation

Duchenne Data Foundation
Duchenne Data Foundation

FAIR Data Sharing Without Oversharing - Duchenne Data Foundation
FAIR Data Sharing Without Oversharing - Duchenne Data Foundation

☑️Duchenne Data Foundation — NGO from the Netherlands, experience with EC,  Horizon 2020, Horizon Europe — Health sector — DevelopmentAid
☑️Duchenne Data Foundation — NGO from the Netherlands, experience with EC, Horizon 2020, Horizon Europe — Health sector — DevelopmentAid

Home - Duchenne Data Foundation
Home - Duchenne Data Foundation

FAIR Data Archives • World Duchenne
FAIR Data Archives • World Duchenne

FAIR Data for Duchenne • World Duchenne
FAIR Data for Duchenne • World Duchenne

Sarepta Therapeutics Shares Clinical Data and Integrated Analysis for  SRP-9001, its investigational Gene Therapy for the Treatment of Duchenne  Muscular Dystrophy - CureDuchenne
Sarepta Therapeutics Shares Clinical Data and Integrated Analysis for SRP-9001, its investigational Gene Therapy for the Treatment of Duchenne Muscular Dystrophy - CureDuchenne

News - Duchenne Data Foundation
News - Duchenne Data Foundation

C-Path's Duchenne Regulatory Science Consortium and Duchenne Data Foundation  Announce Collaboration to Advance Solutions for Duchenne Muscular Dystrophy  | Critical Path Institute
C-Path's Duchenne Regulatory Science Consortium and Duchenne Data Foundation Announce Collaboration to Advance Solutions for Duchenne Muscular Dystrophy | Critical Path Institute

Duchenne Patient Academy 2022 - Duchenne Data Foundation
Duchenne Patient Academy 2022 - Duchenne Data Foundation

Duchenne Data Foundation
Duchenne Data Foundation

Duchenne Data Foundation | LinkedIn
Duchenne Data Foundation | LinkedIn

duchenne – EJP RD – European Joint Programme on Rare Diseases
duchenne – EJP RD – European Joint Programme on Rare Diseases

Home - Duchenne Data Foundation
Home - Duchenne Data Foundation

Elvina Sakellariou - Research and Project Manager - Duchenne Data Foundation  | LinkedIn
Elvina Sakellariou - Research and Project Manager - Duchenne Data Foundation | LinkedIn

Duchenne Data Platform - Duchenne Parent Project
Duchenne Data Platform - Duchenne Parent Project

Duchenne Data Foundation
Duchenne Data Foundation

Duchenne Data Foundation (@DuchenneDF) / X
Duchenne Data Foundation (@DuchenneDF) / X

Duchenne Data Repository, connecting and collecting dystrophinopathy data - Duchenne  Data Foundation
Duchenne Data Repository, connecting and collecting dystrophinopathy data - Duchenne Data Foundation